My beautiful family

My beautiful family

Saturday, July 27, 2013

We are very busy with last minute trips and doctors appointments and getting ready for school to start back up. We had a doctors appointment with the ped neurologist for Aj's 24 hr EEG and what was really stated on the test results. Turns out he is part of the 5% of people that have misfires while asleep with no side effects it just happens and is perfectly safe and harmless. The spazes are a behavioral tic and it will change as to what he does over time and within the next several years, according to the doctor, will stop all together. We are to not draw attention to them and not push him to control them. Also we are to avoid caffeine.

We already went to Wisconsin Dells and booked a hotel in Bronson, Missouri the beginning of August. And in the beginning of August we need to book a long weekend get away in September. I am so excited that God has blessed us with the ability to do all these get away's and reconnect with each other.

In the beginning of August Evey will be having her 2nd upper and lower GI scope. With this one we will see if there are any changes, if any. And if there are changes how much of a change and this will determine as to how long we can wait to remove the colon and how long to wait between scopings to keep tab on things and that they don't get out of control. She seems to doing well with this knowing that she will be able to go to Edwards Hospital and have a totally awesome room with bubbles that reminder her of the movie "The Little Mermaid". Me on the other hand is worrying of the prepping and what kind of toll that is going to be on her little body this go round. I hope the doctor is going to change the prepping around a bit since it was hard on her body and had to be admitted the night before.


Here is a pic of Eveys first water ride at Wisconsin Dells. Jim really had to talk her into even trying it and getting on. Now that she has tried it and LOVE IT, we can not get her off. I love her face expression here in this picture. It really captures her excitement and joy on the ride.

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